Medical Experts

ORGANIZATIONS

UNC Kidney Center
www.unckidneycenter.org
The Kidney Center's mission is to reduce the burden of chronic kidney disease through discovery about the pathophysiology and therapeutics of the disease through the development and assessment of educational programs and information about the causes and treatments of kidney disease.

Watch the latest podcast:
http://www.unckidneycenter.org/kidneyhealthlibrary/podcast_memtreatments.html

You may also watch on iTunes:
http://www.itunes.com/podcast?id=281911702

The National Institute of Diabetes and Digestive Kidney Disease (NIDDK)
www2.niddk.nih.gov/
NIDDK conducts and supports much of the clinical research on the diseases of internal medicine and related subspecialty fields, as well as many basic science disciplines.

The American Society of Pediatric Nephrology (ASPN)
www.aspneph.com/
ASPN consists of pediatric nephrologists and affiliated health care professionals who want to promote optimal care for children with kidney disease through advocacy, education and research; and to disseminate advances in clinical practice and scientific investigation.

American Nephrology Nurses' Association (ANNA)
anna.inurse.com/
ANNA promotes excellence by advancing nephrology-nursing practice and positively influences outcomes for individuals with kidney disease.

The Center for Glomerular Disease at Columbia University
www.glomerularcenter.org/
The Center provides a large resource for defining new diseases of the kidney and studying the relationships between renal histopathology and the clinical features, course, and outcome of the patients.

(The article about online organ donation was moved to the News section)

Human Genome Project (HGP)
www.ornl.gov/
Completed in 2003, the HGP was a 13-year project coordinated by the U.S. Department of Energy and the National Institutes of Health. During the early years of the HGP, the Wellcome Trust (U.K.) became a major partner; additional contributions came from Japan, France, Germany, China, and others.

Kidney Health Australia
www.kidney.org.au/
The organizations conducts outreach those two million Australians who do not know they have early kidney damage. The goal is to enable substantial improvements to the quality of life for people with kidney and urinary tract diseases, their families and careers.

European Renal Association
www.era-edta.org/
The ERA-EDTA is a medical association that encourages and reports advances in the field of clinical nephrology, dialysis, and renal transplantation, based in Europe.

National Kidney Foundation (NKF)
www.kidney.org/
United States-based NKF's vision is to enhance the lives of everyone with, at risk of or affected by kidney disease.

The NephCure Foundation
www.nephcure.org/
The NephCure Foundation is the only organization committed to support research seeking a cause and a cure for two potentially devastating kidney diseases, Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS).

Renal Physicians Association (RPA)
www.renalmd.org/
RPA is an advocacy organization for the nephrology community, working to influence and, where appropriate, change laws, regulations, and public programs to promote optimal care utilizing the highest standards of medical practice for patients with renal and related diseases.

Renal Pathology Society
www.renalpathsoc.org/
The objectives of the Society are to disseminate and to increase knowledge about the pathology and pathophysiology of the kidney, and to encourage the development of renal pathology as a subspecialty.

WEB TOOLS

Glossary of the Human Genome Project
www.ornl.gov/sci/techresources/Human_Genome/glossary/
Terminologies used by scientists describe various aspects of chemical base pairs, which make up DNA and to identify and map the approximately 20,000–25,000 genes of the human genome. Each term is defined for an audience of medical and research professionals.

Bioinformatics Tools for Comparative Genomics
pga.lbl.gov/Workshop/Nov2002/webTools.html
Presented by Berkeley Lawrence Livermore Laboratories, a comparative genomics spreadsheet can be used by researchers to decipher biomedically relevant features in the human genome.

Glomerular Filtration Rate (GFR) Calculator
www.nkdep.nih.gov/professionals/gfr_calculators/index.htm
The National Kidney Disease Education Program provides the modification of diet in renal Disease GFR Calculator for adults and the Schwartz GFR Calculator for children.

Creatinine Clearance Test (CCT)
www-users.med.cornell.edu/~spon/picu/calc/crclcalc.htm
The substance Creatinine a waste product filtered out of the bloodstream through the kidneys. CCT measures the level of the waste product creatinine in blood and urine, which determines how well a patient's kidneys are working.

NEWS & MEDIA

Genomics and Its Impact on Science and Society
www.ornl.gov/
The Human Genome Project and Beyond was published in 2008 and covers basic science and the role of the human genome on public health and society.

Clinical Journal of the American Society of Nephrology
cjasn.asnjournals.org/reports/mfr1.dtl
The 50 most-frequently read articles of the official clinical publication of the American Society of Nephrology are updated monthly online. In print form, there is one volume and 12 issues per year beginning in January.

Journal of the American Society of Nephrology Express
jasn.asnjournals.org/papbysection.shtml
JASN Express published the latest articles online as they are approved for publication, not following a specific editorial calendar. The printed version of JASN is the definitive version and, to the extent any differences exist, will prevail over JASN Express. It is presented by ASN, Cadmus Professional Communications and HighWire Press/Stanford University.

ASN Kidney News
www.asn-online.org/publications/kidneynews/
The newsmagazine examines nephrology research findings and policy changes, pinpointing emerging trends in industry, medicine, and training that impact practitioners in kidney health and disease.

CLEARINGHOUSES AND CONSORTIA

The United States Renal Data System (USRDS)
www.usrds.org/
USRDS is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States, sharing datasets and actively working to improve the accuracy of ESRD patient information.

National Kidney & Urologic Diseases Information Clearinghouse (NKUDIC)
kidney.niddk.nih.gov
www.urologic.niddk.nih.gov
This clearinghouse provides comprehensive information about bladder and renal health and disease for the public: online, in booklets and fact sheets, by email, and over the phone.

Immune Tolerance Network (ITN)
www.immunetolerance.org
The ITN is an international consortium of scientists and physicians dedicated to the clinical evaluation of novel tolerogenic approaches for the treatment of autoimmune diseases.

EDUCATION

Nephrology Self-Assessment Program
www.asn-online.org/education_and_meetings/nephsap/
Nephrology Self-Assessment Program (NephSAP) assists the individual clinicians in the self-assessment of their strengths and weaknesses in the broad domain of nephrology.

National Kidney Diseases Education Program (NKDEP)
www.nkdep.nih.gov/
NKDEP aims to increase awareness of kidney disease and its risk factors, the importance of testing those at risk, and the availability of treatment to prevent or slow the progression to kidney failure.

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